I am extremely proud to share that I have been published in The Journal of Pediatrics!
Not many people can say that they have been published in a scientific journal, but I can, and that is thanks to Deb Disenza of Preemie World and Keira Sorrells of The Preemie Parent Alliance. These are two rock star women who have taken their pain and turned it into advocacy and success.
Our article is called “Remembering the Power of Stories in Pediatric Research” and we discuss how every science statistic has a story behind it.
It’s so important for physicians and researchers to remember that our babies are real people and they were sick (or worse), and they are the reasons for the work that’s being done and the topics being studied.
Here is quote from the beginning of our article:
“Pediatric research is detailed, exacting, and scientific. It provides a clear picture, a freeze frame of the study of a particular issue related to children in their infancy, toddlerhood, childhood, and adolescence. Within studies, the clinical statistics automatically mask faces, remove stories, and keep the focus on sterile data in hopes of educating colleagues on important health topics such as the quality of life for infants with bronchopulmonary dysplasia, as reported by Brady et al1 in this volume of The Journal. But although Brady’s report focused on the parental perspective, we suggest that stories provide a bigger picture on the day-to-day complications these infants face, especially when looking across a set of experiences. We feel it is important to add faces and stories to the data to provide pediatric investigators and professionals an honest look into the lives of patients that have struggled with pulmonary sequelae of prematurity and how chronic respiratory morbidity affects the life of the entire family. With this in mind, the stories of Becky, Joy, and Zoe are told.”
You can get to my section by clicking HERE. I share my daughter’s premature birth story and the medical complications she suffered because of it. Deb and Keira also share their very personal prematurity stories and how they persevered.
Please click the link below to read the full article in The Journal of Pediatrics:
You can view it in Science Direct by clicking below:
As a preemie and NICU parent and as a science teacher for over 20 years, this is truly an honor. I am an educator at heart and I hope our article spreads awareness in both family and physician circles so that all future babies have better outcomes.
I believe the full article is only available for free viewing until May 14, 2019.
I hope I can be a part of another publication in the future.